Astra's Chiari

I like to spend time on my own so i can think. Sometimes i find it difficult to think, probably due to a rare brain condition that i suffer from called Arnold Chiari Malformation. My main symptom is pressure headaches which i have daily and are so severe at times. I also have visual problems blured vision, waving eye movement side to side and visual enlargement,dizziness,stuttering and difficulty getting my words out even though i know what i want to say,cramps in my hands and feet and my fingers and toes twist spastic like,shaking,stiffness when i walk and difficulty putting one foot in front of the other and is very painful and i feel like i've got a broom stuck up my back.
There are many more symptoms assoicated with ACM. I had no idea what this ACM was, so i looked it up on the internet and found all my symptoms that i am suffering and other peoples blogs. ACM can be a lonely condition. Myself i hav'nt come a cross anyone to speak too about it who knows of the condition, not even medical staff knows anything about it. There is only 1 in 1000 people who suffer from ACM. It seems to me it is more rare here in the UK than it is in America. All the information i have is from America.

I was diagnosed with ACM about four years ago now when i was sent for an MRI scan by my neurologist. Untill i got my results from the hospital i thought i was going crazy because in the beginning my GP kept telling me there was nothing wrong with me and he got a bit short tempered with me at the time and thought i was a hypochondriac. Now that i know whats wrong i can move forward and deal with my situation and know what to expect in the future and hopefully i won't have to have surgery at a later date.